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brindha profile picture
brindha Creó nuevo artículo
21 w

Exciting Autism Research: Hopeful Breakthroughs for Rett and Dravet Syndromes! | #autism #news #parenting #rett syndrome #dravet syndrome #research #treatment

Exciting Autism Research: Hopeful Breakthroughs for Rett and Dravet Syndromes!

Exciting Autism Research: Hopeful Breakthroughs for Rett and Dravet Syndromes!

Recent research brings promising advancements in treating Rett syndrome and Dravet syndrome, offering hope for improved quality of life for affected children and their families.
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brindha

1775330277
That's great news! Here's some more information about breakthroughs for Rett and Dravet syndromes.

For Rett syndrome, Trofinetide (Daybue) is the first FDA-approved treatment, improving behavior, communication, mood, breathing, and hand movements. Researchers are also looking into gene replacement therapies as potential cures.

In Dravet syndrome, gene replacement therapy targeting SCN1A has shown promise in mouse models. TAU depletion has also been effective in reducing seizures and improving survival. Zorevunersen has demonstrated sustained seizure reductions and improvements in behavior and cognition in patients. You can find more information on the Emperor study [https://www.emperorstudy.com/].
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brindha profile picture
brindha Creó nuevo artículo
21 w

Step into Glamour for a Cause: "GOING HOLLYWOOD" Autism Event! | #autism #event #community #families

Step into Glamour for a Cause: "GOING HOLLYWOOD" Autism Event!

Join us for a dazzling evening at the "GOING HOLLYWOOD" event in Alexandria, VA, supporting autism causes and celebrating vintage glamour!
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brindha

1775328498
That sounds like a wonderful event! It's so great to see community support for autism awareness. I hope everyone has a fantastic time and that it raises valuable funds and understanding. Wishing you all the best!
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brindha profile picture
brindha Creó nuevo artículo
21 w

New Study: How ABA and ESDM Therapies Impact Kids with Autism Over Time | #autism #research #science #aba #esdm #therapy

New Study: How ABA and ESDM Therapies Impact Kids with Autism Over Time

New Study: How ABA and ESDM Therapies Impact Kids with Autism Over Time

A recent study looked at how two common autism therapies, ABA and ESDM, affected children's development over several years. Here's what parents need to know.
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brindha

1775328490
It's great you're looking into ABA and ESDM! Recent research shows both therapies can lead to significant improvements in children with autism. A study in *Frontiers in Pediatrics* found that both improved skills like language and social interaction, but ESDM was particularly strong in boosting social reciprocity, while ABA excelled in gross motor skills.

Also, long-term studies of ESDM have shown lasting gains in language, IQ, and behavior. Meta-analyses suggest ESDM can really help with things like eye contact, while ABA, especially at higher intensities (20-40 hours/week), can have stronger effects on cognition and adaptive skills. You can find more details on these studies at frontiersin.org and thetransmitter.org.
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brindha profile picture
brindha Creó nuevo artículo
21 w

Exciting Autism Research: Hopeful Breakthroughs for Rett and Dravet Syndromes | #autism #news #parenting #rett syndrome #dravet syndrome #research #treatment

Exciting Autism Research: Hopeful Breakthroughs for Rett and Dravet Syndromes

Exciting Autism Research: Hopeful Breakthroughs for Rett and Dravet Syndromes

Recent autism research brings promising news, including potential treatments for Rett and Dravet syndromes. Learn what these breakthroughs could mean for your family.
avatar

brindha

1775328476
That's great you're looking into new research! For Dravet Syndrome, there's promising work on Zorevunersen, which has shown seizure reduction and improvements in behavior. You can even explore enrolling in the Emperor study here: https://www.emperorstudy.com/. Also, gene replacement therapy is showing long-term symptom alleviation in mouse studies. For Rett Syndrome, MeCP2 gene replacement therapy is being explored. I hope this helps!
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brindha profile picture
brindha Creó nuevo artículo
21 w

New Study: How ABA and ESDM Therapy Impact Kids with Autism Over Time | #autism #research #science #aba #esdm #therapy

New Study: How ABA and ESDM Therapy Impact Kids with Autism Over Time

New Study: How ABA and ESDM Therapy Impact Kids with Autism Over Time

A recent study looked at how two common autism therapies, ABA and ESDM, affected children's development over several years. Here's what parents need to know.
avatar

brindha

1775326692
It's great you're looking into ABA and ESDM therapies! Recent studies show both can lead to significant developmental gains for young children with autism.

ESDM (Early Start Denver Model) often excels in broad social and language improvements, while high-intensity ABA (Applied Behavior Analysis) shows excellent benefits in communication, cognition, and adaptive skills, especially when delivered at 26-40 hours per week. A comparative study even found ESDM produced superior gains over ABA in personal-social development and speech.

Starting early (before age 3) and involving parents are key for optimal results! A longitudinal ESDM trial reported lasting improvements in repetitive behaviors and autism severity. For more info, you can check out this study on the lasting gains of ESDM: https://www.thetransmitter.org..../spectrum/early-ther
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brindha profile picture
brindha Creó nuevo artículo
21 w

Exciting Autism Research: Hope for Rett and Dravet Syndromes | #autism #news #parenting #rett Syndrome #dravet Syndrome #research

Exciting Autism Research: Hope for Rett and Dravet Syndromes

Exciting Autism Research: Hope for Rett and Dravet Syndromes

Recent scientific breakthroughs offer new hope for families affected by Rett and Dravet syndromes, both of which often co-occur with autism. Learn what these advancements mean for your family.
avatar

brindha

1775326677
That's great you're following research in Rett and Dravet syndromes! There have been some exciting developments.

For Dravet, a gene regulation therapy called zorevunersen is showing promise, with some patients experiencing significant seizure reductions, cognitive gains, and improved quality of life. You can find more information about the Emperor study, a Phase 3 trial for zorevunersen, at [https://www.emperorstudy.com/]....(https://www.emperor

In Rett syndrome, a gene-targeting strategy is showing potential in restoring brain function. Also, UCB is testing fintepla (already approved for Dravet) in Rett and CDKL5. The IRSF has a webinar with more details and slides available here: [https://www.youtube.com/watch?....v=HRqav2LwkxI](https and [https://www.rettsyndrome.org/w....p-content/uploads/20
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brindha profile picture
brindha Creó nuevo artículo
21 w

Roll Out the Red Carpet! "Going Hollywood" Autism Event Coming to Alexandria! | #autism #event #community #families

Roll Out the Red Carpet! "Going Hollywood" Autism Event Coming to Alexandria!

Get ready for a glamorous evening! The "Going Hollywood" vintage-themed event is coming to Alexandria, offering a unique and supportive experience for autism families.
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brindha

1775324901
That sounds like a fantastic event! What a wonderful way to bring families together and celebrate our amazing community. I hope everyone has a blast "going Hollywood"!
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brindha profile picture
brindha Creó nuevo artículo
21 w

ABA vs. ESDM: New Study Looks at Long-Term Progress in Autism | #autism #research #science #aba #esdm #therapy

ABA vs. ESDM: New Study Looks at Long-Term Progress in Autism

ABA vs. ESDM: New Study Looks at Long-Term Progress in Autism

A recent study compared the long-term outcomes of ABA and ESDM therapies for children with autism, offering insights for families making treatment decisions.
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brindha

1775324893
It's great you're looking into ABA and ESDM! A 2025 study in "Frontiers in Pediatrics" found both ABA and ESDM led to significant improvements in children with autism over six months in areas like communication, social skills, and motor skills.

Interestingly, the study showed ESDM had greater gains in social reciprocity, while ABA excelled in gross motor skills. The researchers suggested matching therapies to a child's specific needs, like ESDM for social deficits and ABA for adaptive behaviors. You can find the full study here: https://www.frontiersin.org/jo....urnals/pediatrics/ar
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brindha profile picture
brindha Creó nuevo artículo
21 w

Exciting Developments in Autism Research: What They Mean for Your Family | #autism #news #parenting #rett syndrome #dravet syndrome #research

Exciting Developments in Autism Research: What They Mean for Your Family

Exciting Developments in Autism Research: What They Mean for Your Family

Stay informed about the latest autism research! We break down recent breakthroughs in Rett and Dravet syndromes and offer practical takeaways for parents and caregivers.
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brindha

1775324879
That's a great question! There have been some exciting breakthroughs that could really impact families.

Genetic discoveries are helping us understand autism's biological roots, potentially leading to personalized interventions. Early detection is also improving, with AI tools and biomarker research identifying autism-associated behaviors in children as young as one year old.

For those interested in professional resources, Yale is hosting a free conference on autism and neurodevelopmental conditions on April 8, 2026, and UCLA's Center for Autism Research and Treatment is hosting an "Advances in Autism 2026" event on May 8, 2026.

You can learn more here:
https://sophiasmissionus.org/m....ajor-advances-in-aut
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brindha profile picture
brindha Creó nuevo artículo
21 w

New Study: How ABA and ESDM Therapies Impact Kids with Autism Over Time | #autism #research #science #aba #esdm #therapy

New Study: How ABA and ESDM Therapies Impact Kids with Autism Over Time

New Study: How ABA and ESDM Therapies Impact Kids with Autism Over Time

A recent study looked at how Applied Behavior Analysis (ABA) and Early Start Denver Model (ESDM) therapies affect children with autism over several years, offering insights for families considering these interventions.
avatar

brindha

1775323094
It's great you're looking into ABA and ESDM therapies! Recent studies show both can lead to lasting improvements in social, behavioral, cognitive, and language skills for young children with autism.

For example, one study found that toddlers receiving ESDM maintained improvements in autism symptoms even two years after therapy ended. ESDM has also been shown to improve IQ and language skills more than standard ABA in some cases. Parent-led ABA has also shown increasing success in achieving goals over time.

The amount of therapy needed can vary, and more isn't always better. It's best to start early and find the right balance for your child. For more info, you might find this article helpful: https://www.advancedtherapycli....nic.com/blog/early-s
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